Series 19: Clinical Registries: Improving Care Through Quality Insights

Clin­i­cal reg­istries play an impor­tant role in improv­ing health­care by col­lect­ing and analysing patient out­comes. They help clin­i­cians and ser­vices under­stand where care varies, com­pare per­for­mance and use these insights to improve care over time. 

That’s why clin­i­cal reg­istries are a key focus with­in the CEIH’s Pri­or­i­ty Focus Area on data-dri­ven clin­i­cal deci­sion mak­ing. This reflects our com­mit­ment to improv­ing how clin­i­cal reg­istries are devel­oped, con­nect­ed and used across South Australia.

Across the series, speak­ers from South Aus­tralia and beyond shared prac­ti­cal clin­i­cal, data and gov­er­nance insights, show­ing how well-designed reg­istries are being used in real set­tings to sup­port evi­dence-based deci­sion mak­ing and con­tin­u­ous qual­i­ty improvement.

Episode 59: Get­ting Clin­i­cal Reg­istry Gov­er­nance Right: Trust, Access and Use

Tama­ra Hoop­er (Strate­gic Direc­tor, SAHM­RI Reg­istry Cen­tre)
Pro­fes­sor Andrew Bersten (Exec­u­tive Direc­tor of Research, SAL­HN) and Karen Sax­ty (Direc­tor Research Oper­a­tions, SALHN)

Strong gov­er­nance is what turns reg­istry data into safe, usable insight.

In this episode, learn about:

• the work of the South Aus­tralian Health and Med­ical Research Insti­tute (SAHM­RI) Reg­istry Cen­tre, out­lin­ing com­mon gov­er­nance chal­lenges and show­ing how well-designed gov­er­nance can sup­port high-qual­i­ty research, inform pol­i­cy and dri­ve con­tin­u­ous improve­ment in clin­i­cal care
• how the South­ern Ade­laide Local Health Net­work (SAL­HN) is mov­ing from frag­ment­ed reg­istry prac­tices to a more con­sis­tent gov­er­nance mod­el, explor­ing chal­lenges and lessons learned, includ­ing man­ag­ing new and exist­ing reg­istries, sys­tem and plat­form vari­a­tion, and con­sent and eth­i­cal considerations.

Episode 60: Spot the Gap, Shift the Care: Clin­i­cal Reg­istries in Action

Asso­ciate Pro­fes­sor Court­ney Ryder (Co-Direc­tor, Health Equi­ty Impact Pro­gram, Flinders Health and Med­ical Research Insti­tute, Flinders Uni­ver­si­ty)
Asso­ciate Pro­fes­sor Asan­ga Abe­yaratne (Con­sul­tant Nephrol­o­gist, Roy­al Dar­win Hospital)

The way we design and use data can shape equi­ty in care.

In this episode, hear why: 

• improv­ing health equi­ty requires a shift towards Indige­nous data gov­er­nance, sov­er­eign­ty and lead­er­ship in how health data are defined, col­lect­ed and used 
• Ter­ri­to­ry Kid­ney Care and the NT Kid­ney Dash­board are sup­port­ing ear­li­er iden­ti­fi­ca­tion and man­age­ment of chron­ic conditions.

Episode 61: Beyond the Dash­board: How Reg­istries Improve Sys­tems and Outcomes

Pro­fes­sor Maria Ina­cio, Direc­tor (Direc­tor, Reg­istry of Senior Aus­tralians Research Cen­tre, SAHM­RI)
Asso­ciate Pro­fes­sor Paul Sec­ombe (Clin­i­cal Lead, Adult Patient Data­base, ANZ­ICS CORE & Senior Con­sul­tant, Inten­sive Care Unit, CALHN)

Clin­i­cal reg­istries can do more than report results — they can help health sys­tems learn, adapt and improve care.

In this episode, explore how:

• inte­grat­ed data from nation­al plat­forms such as the Reg­istry of Senior Aus­tralians (ROSA) data plat­form is being used to analyse the safe­ty and qual­i­ty of care for old­er Australians.
• clin­i­cal qual­i­ty reg­istries, such as the Aus­tralian and New Zealand Inten­sive Care Soci­ety Cen­tre for Out­come and Resource Eval­u­a­tion (ANZ­ICS CORE) reg­istry, are being used beyond report­ing out­comes in crit­i­cal care set­tings to inform learn­ing, improve­ment and deci­sion mak­ing across the health system.

Episode 62: Why Clin­i­cal Reg­istries, Why Now?

Pro­fes­sor Stephen McDon­ald (Clin­i­cal Lead, Clin­i­cal Reg­istries Project, CEIH & Senior Staff Nephrol­o­gist, CALHN)

Clin­i­cal reg­istries are cen­tral to the CEIH’s Pri­or­i­ty Focus Area on data-dri­ven clin­i­cal deci­sion making.

In this episode, learn about the Clin­i­cal Reg­istries Project and its role in strength­en­ing how data is used to sup­port bet­ter care across South Aus­tralia. It out­lines why a focus on improv­ing how reg­istries oper­ate in South Aus­tralia is both impor­tant and timely.