The Statewide Adolescent Transition Care Clinical Network (SATCCN) is undertaking a journey mapping project to identify the challenges faced by young people with complex medical conditions in transition from paediatric to adult care services in South Australia.
The project will identify:
- The needs of young people during transition
- The elements that contribute to a successful transition.
The project will be a qualitative study, utilising health journey mapping tools and processes, to better understand and document the complex needs of young adults transitioning from paediatric to adult care services in South Australia.
Health journey mapping is a relatively new methodology in healthcare research which focuses on the experiences, challenges, strengths and responses of individuals in the context of their journey through the healthcare system.
The research team is led by Associate Professor Josephine Thomas Director of Physician Education, Central Adelaide Local Health Network, who works at Multidisciplinary Ambulatory Consulting Service (MACS) outpatient service at the Royal Adelaide Hospital (RAH).
Other members of the research team include:
- Dr Jemma Anderson — Clinical Lead of the SATCCN,
- Dr Betty-Jean Dee-Price – Researcher and sessional lecturer – Flinders University
- Dr Janet Kelly — Research Lead: Improving Health Journeys & Course Coordinator – University of Adelaide.
The research team is being supported by The CEIH team members who will conduct interviews for the project.
The interviews will be used by the investigators to generate health journey maps and case studies to provide an informative narrative of the experience and perceptions of transition.
Key themes will be drawn from the data to highlight effective elements, challenges, barriers and gaps for young people and their advocates in transition. This project will support and inform other projects being led by the SATCCN, including the development of a Statewide Adolescent Transition Framework, to improve the quality and delivery of care to young people.