Researching how young people with a chronic illness transition from paediatric to adult services
29 Jun 2022
Chronic conditions affect a large number of adolescents. These conditions often continue through to adulthood; however, many young people fall through the gaps when transitioning from youth to adult services.
This results in disengagement with health services, an increase in unplanned hospital admissions and emergency room visits, as well as decreased outpatient health care utilisation. Currently, there is no national framework for adolescent transition, or integrated systems to capture data to generate evidence to inform best practice.
The adolescent transition research project is a collaboration between the CEIH Statewide Adolescent Transition Care Clinical Network and the University of Adelaide. The project will link longitudinal data from two existing but separate databases that will combine health and social system data (e.g. emergency presentations, education, welfare) and outpatient data from the Women’s and Children’s Hospital (WCHN) outpatient dataset to the BEBOLD database. Exploring the feasibility of using the data sets in this way should be completed by September 2022.
The project then plans to utilise these linked datasets to answer questions around how young people with a chronic illness transition from paediatric to adult services, aiming to;
- Provide an understanding of how well we capture chronic health conditions in adolescence and data on adolescent care transition
- Consider the impact of chronic illness on long term life outcomes
- Identify predictors for poor transition.
The information ascertained through the project will help to inform statewide adolescent transition and provide a basis for future work between CEIH and the University of Adelaide.
To learn more about the Network, see Adolescent Transition Care Clinical Network.