Information about genetic testing is complex and can be overwhelming for patients. We are piloting the use of a digital consent process and a supporting animated informational video to provide patients and their families more time and information to consider the benefits and implications of genetic testing and to allow for more informed consent.
Our Statewide Clinical Genomics Network Lead, Professor Chris Barnett, has been meeting with key stakeholders in genomics and other health areas to share our interim learnings and results and to discuss potential opportunities for digital consent to be used more broadly.
To support the online hosting of the video and digital consent process, an online patient pathway has been developed. The pathway provides the added benefit of allowing patients to provide information about their family history and other health information digitally and remotely through any internet enabled device such as a mobile phone, computer, or tablet. The system also provides reminders about upcoming appointments and provides plain language practical directions to the location of their clinic appointment. By using the pathway to provide and obtain information, and a digital consent through an electronic signature prior, the consultation can focus more on the patient’s health needs.
More recently, Professor Barnett presented about the digital consent pilot at the Women’s and Children’s Health Network’s Improvement Showcase in South Australia and to key stakeholders of the Melbourne Genomics Health Alliance.
Browse our website for more information on current and upcoming projects of the Statewide Clinical Genomics Network.