Young people with chronic illnesses often face unique challenges, including navigating the transition from paediatric to adult healthcare.
The Health Journey Mapping Project is a qualitative study, led by A/Professor Josephine Thomas, in collaboration with the Adolescent Transition Care Statewide Clinical Network (SCN), the University of Adelaide and Flinders University, to improve the transition of care for young people with complex chronic health conditions. As part of the study, young South Australian adults, and their families are interviewed about their experiences navigating care between both paediatric and adult settings.
Some of the participants in the study also have communication disabilities, such as difficulty speaking or hearing, with specific communication access needs. To enable equitable participation in the study, the interviewers from the CEIH team underwent training around communication access needs and identified the need for participant information and consent forms to be provided in an easy-read format. Easy read is a way to present information in a unique way or style so that the information provided is easy to understand.
The project is funded by Central Adelaide Local Health Network (CALHN) and learnings from the Health Journey Mapping Project will support and inform other projects being led by the Adolescent Transition Care SCN to improve the access, quality and experience of transitioning care for young people.
The interviews for the project commenced in June 2023 with the remaining interviews due to be completed by the end of the year. The interview and research team have been meeting weekly to reflect and discuss the topics and themes presented across the interviews.
The research team has already identified some promising insights from the study and these findings will be presented at the Australian Association for Adolescent Health Conference in Adelaide in November 2023.
The research team would like to acknowledge and thank the participants for their openness and willingness to be a part of the study.
For more information about the Health Journey Mapping Project, please contact us at CEIH.AdolescentTransition@sa.gov.au.