Commission on Excellence and Innovation in Health

Young South Australians with complex chronic health problems share their experiences of transitioning care through the Health Journey Mapping Project

22 Sept 2023

Young peo­ple with chron­ic ill­ness­es often face unique chal­lenges, includ­ing nav­i­gat­ing the tran­si­tion from pae­di­atric to adult healthcare. 

The Health Jour­ney Map­ping Project is a qual­i­ta­tive study, led by A/​Professor Josephine Thomas, in col­lab­o­ra­tion with the Ado­les­cent Tran­si­tion Care Statewide Clin­i­cal Net­work (SCN), the Uni­ver­si­ty of Ade­laide and Flinders Uni­ver­si­ty, to improve the tran­si­tion of care for young peo­ple with com­plex chron­ic health con­di­tions. As part of the study, young South Aus­tralian adults, and their fam­i­lies are inter­viewed about their expe­ri­ences nav­i­gat­ing care between both pae­di­atric and adult settings. 

Some of the par­tic­i­pants in the study also have com­mu­ni­ca­tion dis­abil­i­ties, such as dif­fi­cul­ty speak­ing or hear­ing, with spe­cif­ic com­mu­ni­ca­tion access needs. To enable equi­table par­tic­i­pa­tion in the study, the inter­view­ers from the CEIH team under­went train­ing around com­mu­ni­ca­tion access needs and iden­ti­fied the need for par­tic­i­pant infor­ma­tion and con­sent forms to be pro­vid­ed in an easy-read for­mat. Easy read is a way to present infor­ma­tion in a unique way or style so that the infor­ma­tion pro­vid­ed is easy to understand. 

The project is fund­ed by Cen­tral Ade­laide Local Health Net­work (CAL­HN) and learn­ings from the Health Jour­ney Map­ping Project will sup­port and inform oth­er projects being led by the Ado­les­cent Tran­si­tion Care SCN to improve the access, qual­i­ty and expe­ri­ence of tran­si­tion­ing care for young people. 

The inter­views for the project com­menced in June 2023 with the remain­ing inter­views due to be com­plet­ed by the end of the year. The inter­view and research team have been meet­ing week­ly to reflect and dis­cuss the top­ics and themes pre­sent­ed across the interviews. 

The research team has already iden­ti­fied some promis­ing insights from the study and these find­ings will be pre­sent­ed at the Aus­tralian Asso­ci­a­tion for Ado­les­cent Health Con­fer­ence in Ade­laide in Novem­ber 2023

The research team would like to acknowl­edge and thank the par­tic­i­pants for their open­ness and will­ing­ness to be a part of the study. 

For more infor­ma­tion about the Health Jour­ney Map­ping Project, please con­tact us at CEIH.​AdolescentTransition@​sa.​gov.​au.